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Showing posts with label lethal fetal anomalies. Show all posts
Showing posts with label lethal fetal anomalies. Show all posts
Wednesday, August 5, 2015
Time Magazine Got It Wrong By Sarah St. Onge
Last week, Time magazine featured a commentary
by Katie Lyon, a mother who terminated her pregnancy due to a poor pregnancy diagnosis. She
chose to terminate her pregnancy in the second trimester due to her unborn
daughter's diagnosis of Spina bifida and other issues which she does not expand
upon. The goal of Ms. Lyon's commentary was to explain how fetal tissue donation works as a way of
showing her support for Planned Parenthood. However, her characterization is a grossly inappropriate defense of Planned
Parenthood's tissue procurement and "donation" process.
I am going to begin this by stating clearly -- this is a response to Ms. Lyon's support of fetal tissue donation through Planned Parenthood, not her decision to terminate her pregnancy. I am personally and politically 100% pro-life with no exceptions, and I do not support fetal tissue donation at any gestation. I do understand what it is like to be given a poor pregnancy diagnosis for your unborn child, and I myself am regrettably post-abortive. This confluence of life experience makes my writing this extremely touchy. My empathy towards a grieving mother is too great to create a dynamic where her decision is something to cheaply debate about on social media. My own culpability in ending the life of my unborn child leaves me very little latitude to pass personal judgment against the mother. However, in the interest of being true to my own ethical and moral beliefs I need to clarify that no matter what the gestation, I believe donating "fetal tissue" is terribly wrong.
As the mother of a child who was diagnosed in the womb with a lethal birth defect and who runs a website for families whose children are diagnosed with my daughter's disorder, I do have a unique insight into the donation of fetal tissue for research purpose. I myself have created agreements with researchers to accept donations from our babies, and many of our families have chosen to make both tissue and whole body donations for science.
The first item I would like to address is the most obvious: it is not necessary to end the life of your child in order to donate tissue for medical research-- and if you continue your pregnancy, in some cases, your baby may be able to donate tissue to other babies who are on recipient waiting lists. Heart valves, corneas and cartilage can all be used to enhance or save the life of a baby waiting for transplant. There are even organizations which help families investigate the complexities of neonatal tissue donation. Purposeful Gift is one of the most prominent organizations helping parents navigate this territory.
Secondly, the type of tissue donation of which she is speaking is nothing like what we have seen from the Planned Parenthood videos. As she herself clearly states, she donated to a specific organization specializing in Spina bifida research. The donation was handled by a genetic counselor in her physician’s office. Chances are (and I could be wrong about this because I'm not certain how she specifically handled her "termination,") she had her procedure in an outpatient setting, most likely in a hospital or surgical center -- not an abortion clinic. I also highly doubt Ms. Lyon's physician haggled with the researchers over storage and transport costs, and most likely did not "part out" her unborn baby. Ms. Lyon's donation was similar to the type of {whole body} donation to science which many people choose during their end-of-life planning. Ms. Lyon's contribution was no doubt appreciated by those who received her daughter's remains. I imagine they were treated with dignity and respect, and even reverence, recognized for what they were -- the remains of a human being with a serious congenital birth defect; though the whole body donation of a precious baby carried to term and delivered to {a short} life would be most appreciated, both by scientist researching specific disorders, and families whose children are waiting for life altering and life saving transplants.
Third, and finally -- in the past few weeks many still images have come out along with the Planned Parenthood videos. Two of them which have made their way into my timeline are these: {1} and {2} . Note that they are marked very clearly with the notation "no abnormalities". I do acknowledge these to be older examples of procurement requests, however, it would still be accurate to claim that due to the nature of research done with stem cells, unless someone is actually studying a congenital anomaly they aren't going to accept tissue donations from babies like Ms. Lyon's. Tissue with abnormalities simply isn't usable for general research or curative medicinal purposes.
I end this repeating my statement above -- at this time, I am not intending to
open a debate on whether Ms. Lyon's choice to terminate her pregnancy was the
correct one or not. This is not because I have no opinion on terminations done
for medical reasons -- I have quite strong opinions on this subject. It's
because it would cheapen the life of her precious baby to turn her into nothing
more than an internet debate. My own commentary was only necessary because her
justification of Planned Parenthood's practices was inappropriate, and could be
used to further an agenda which purports to be compassionate, but is instead
avaricious.
Two additional notes:
{For clarification purposes -- when most people think "stem cells" they are thinking of pluripotent embryonic stem cells, which come from discarded IVF blastocysts, and are not the same as the fetal stem cells which are being harvested by Planned Parenthood. Fetal stem cells are used in a similar fashion to adult stem cells, and the utilization of them is both unnecessary and -- some believe -- scientifically inappropriate.}
{All terms used to identify developmental stages of an unborn child's life in the womb are the common scientific terms, and in no way used to imply that an unborn child is anything less than human at any stage of gestation.}
BIO: Sarah St. Onge is a wife, mother of 4,
step-mother of 2, and pro-life blogger for Save The 1. She blogs on grief, loss, and pro-life
issues pertaining to continuing a pregnancy after a lethal anomaly has been
diagnosed, at www.shebringsjoy.com.
I am going to begin this by stating clearly -- this is a response to Ms. Lyon's support of fetal tissue donation through Planned Parenthood, not her decision to terminate her pregnancy. I am personally and politically 100% pro-life with no exceptions, and I do not support fetal tissue donation at any gestation. I do understand what it is like to be given a poor pregnancy diagnosis for your unborn child, and I myself am regrettably post-abortive. This confluence of life experience makes my writing this extremely touchy. My empathy towards a grieving mother is too great to create a dynamic where her decision is something to cheaply debate about on social media. My own culpability in ending the life of my unborn child leaves me very little latitude to pass personal judgment against the mother. However, in the interest of being true to my own ethical and moral beliefs I need to clarify that no matter what the gestation, I believe donating "fetal tissue" is terribly wrong.
As the mother of a child who was diagnosed in the womb with a lethal birth defect and who runs a website for families whose children are diagnosed with my daughter's disorder, I do have a unique insight into the donation of fetal tissue for research purpose. I myself have created agreements with researchers to accept donations from our babies, and many of our families have chosen to make both tissue and whole body donations for science.
The first item I would like to address is the most obvious: it is not necessary to end the life of your child in order to donate tissue for medical research-- and if you continue your pregnancy, in some cases, your baby may be able to donate tissue to other babies who are on recipient waiting lists. Heart valves, corneas and cartilage can all be used to enhance or save the life of a baby waiting for transplant. There are even organizations which help families investigate the complexities of neonatal tissue donation. Purposeful Gift is one of the most prominent organizations helping parents navigate this territory.
Secondly, the type of tissue donation of which she is speaking is nothing like what we have seen from the Planned Parenthood videos. As she herself clearly states, she donated to a specific organization specializing in Spina bifida research. The donation was handled by a genetic counselor in her physician’s office. Chances are (and I could be wrong about this because I'm not certain how she specifically handled her "termination,") she had her procedure in an outpatient setting, most likely in a hospital or surgical center -- not an abortion clinic. I also highly doubt Ms. Lyon's physician haggled with the researchers over storage and transport costs, and most likely did not "part out" her unborn baby. Ms. Lyon's donation was similar to the type of {whole body} donation to science which many people choose during their end-of-life planning. Ms. Lyon's contribution was no doubt appreciated by those who received her daughter's remains. I imagine they were treated with dignity and respect, and even reverence, recognized for what they were -- the remains of a human being with a serious congenital birth defect; though the whole body donation of a precious baby carried to term and delivered to {a short} life would be most appreciated, both by scientist researching specific disorders, and families whose children are waiting for life altering and life saving transplants.
This is very different than the "tissue donation" for stem cell research we see in the
Planned Parenthood videos. The callousness with which the workers treat the
remains of beings even they identify as humans is appalling. There is no
appreciation, no understanding, and definitely no reverence. These babies are
parted out for indifferent researchers. There is no correlation between the two
circumstances.
Third, and finally -- in the past few weeks many still images have come out along with the Planned Parenthood videos. Two of them which have made their way into my timeline are these: {1} and {2} . Note that they are marked very clearly with the notation "no abnormalities". I do acknowledge these to be older examples of procurement requests, however, it would still be accurate to claim that due to the nature of research done with stem cells, unless someone is actually studying a congenital anomaly they aren't going to accept tissue donations from babies like Ms. Lyon's. Tissue with abnormalities simply isn't usable for general research or curative medicinal purposes.

Two additional notes:
{For clarification purposes -- when most people think "stem cells" they are thinking of pluripotent embryonic stem cells, which come from discarded IVF blastocysts, and are not the same as the fetal stem cells which are being harvested by Planned Parenthood. Fetal stem cells are used in a similar fashion to adult stem cells, and the utilization of them is both unnecessary and -- some believe -- scientifically inappropriate.}
{All terms used to identify developmental stages of an unborn child's life in the womb are the common scientific terms, and in no way used to imply that an unborn child is anything less than human at any stage of gestation.}

Wednesday, February 25, 2015
Pain-Capable Abortion Bans with Exceptions are Not Pro-Life Bills bySarah St. Onge
Last week the South Carolina House voted to prohibit abortion after 20 weeks post-conception based on the strong likelihood of pain on the part of the unborn child. The law was passed without rape, incest, or fetal anomaly restrictions- a monumental achievement given the status of our current "pro-life" belief system in this country.
There is a possibility that this South Carolina legislation could pass into law- questionable is whether it will pass without those exceptions for rape, incest, or fetal anomaly. Governor Nikki Haley has expressed her support, promising to sign the bill into legislation as is, should it make it to her desk. Unfortunately supporting "no exceptions" abortion prohibitions is something that many politicians see as a political kiss of death, and many are afraid to openly do so. The few brave souls who do openly support no compromise legislation rarely offer a strong defense for their position- more often stumbling in their efforts when questioned or criticized. It remains to be seen whether the SC Senate will actually leave this an authentically pro-life law, or add those exceptions into the bill.
In addition to the bill in South Carolina, there are ten states which already have pain-capable abortion bans on the books. In addition there are other pain-capable bills presently working their way through state legislatures. For example, Ohio and Virginia are currently working on amending abortion laws to protect their most vulnerable citizens. Almost all manifestations of these laws are facing debate over exceptions for rape, incest, or fetal anomaly. Problematic in this is the nature of what the bill is trying to accomplish -- ending abortion after the point where an unborn child most likely begins to feel pain.
There is one item which seems to be ignored by those supporting these exemptions, including some pro-life supporters:
As the mother of a child born with lethal birth defect, and who did not live for very long after birth, I feel that my personal experience offers me a deeper understanding of what these laws mean. Whether an unborn child can feel pain is not an abstract concept to be fought out as political philosophy nor should it be a power maneuver by institutional trade unions (ie. ACOG) whose monopoly on women's health issues is coming to an end. It is a real question with which families will struggle when making decisions about facing an exceptional pregnancy. Babies like my daughter are purposely excluded from laws meant to protect unborn children from excruciating pain -- for no fault of their own, but rather because of society’s perception of what it means to continue a pregnancy after receiving a poor diagnosis.
There have been numerous studies, which seem to definitively prove that an unborn child can feel pain. Some studies indicate that a child at 20 weeks post-conception feels pain more acutely than a post-birth baby.
The question is, if this is the case -- why would exceptions be acceptable to anyone, especially the pro-life person?
Why is it acceptable to close our eyes to the possibility of such excruciating pain on the part of an unborn child, solely based on the events surrounding their conception or their perceived disability or life expectancy? Is there some physiological difference between babies conceived during rape and those who were not, which causes the unborn child of rape to feel pain less acutely? We know for certain that many infants with cephalic issues have active pain responses even when portions of their brains are damaged or even missing. There is no evidence that babies with anomalies feel less pain then congenitally intact infants.
The South Carolina House has taken a stand and delivered a truly pro-life piece of legislation which is a model for all other pro-life legislatures. It is also a model of what pro-life actually means for the rest of us. The understanding that pro-life means pro-all-life is something which needs to be addressed more specifically.
The majority of Americans support pain-capable abortion restrictions. Most likely a politician passing pro-life legislation was elected in part because of their life-affirming position and not through the votes of their pro-choice constituency. Yet exceptions for rape, incest, and fetal anomaly are regularly included in pro-life legislation. This is one of the most troubling aspects of this issue -- that these politicians supporting these laws are "pro-life" politicians. They represent pro-life persons when they vote. They represent you.
It is incumbent upon us to begin elucidating our positions from a logical standpoint -- if we are to support pain-capable legislation, then we need to support it for every baby, not just those who were conceived in optimal circumstances. If we create a dynamic where delegating negative value to certain groups of people is acceptable, then babies like my daughter are going to be the recipients. Unborn children will continue to be relegated a place in a strange hierarchy which assumes a pro-life title, but is discriminatory and anything but pro-life.
Abortion laws in which exceptions exist codify discrimination.
As the mother of a child born with lethal birth defect, and who did not live for very long after birth, I feel that my personal experience offers me a deeper understanding of what these laws mean. Whether an unborn child can feel pain is not an abstract concept to be fought out as political philosophy nor should it be a power maneuver by institutional trade unions (ie. ACOG) whose monopoly on women's health issues is coming to an end. It is a real question with which families will struggle when making decisions about facing an exceptional pregnancy. Babies like my daughter are purposely excluded from laws meant to protect unborn children from excruciating pain -- for no fault of their own, but rather because of society’s perception of what it means to continue a pregnancy after receiving a poor diagnosis.
There have been numerous studies, which seem to definitively prove that an unborn child can feel pain. Some studies indicate that a child at 20 weeks post-conception feels pain more acutely than a post-birth baby.
The question is, if this is the case -- why would exceptions be acceptable to anyone, especially the pro-life person?
Why is it acceptable to close our eyes to the possibility of such excruciating pain on the part of an unborn child, solely based on the events surrounding their conception or their perceived disability or life expectancy? Is there some physiological difference between babies conceived during rape and those who were not, which causes the unborn child of rape to feel pain less acutely? We know for certain that many infants with cephalic issues have active pain responses even when portions of their brains are damaged or even missing. There is no evidence that babies with anomalies feel less pain then congenitally intact infants.
The South Carolina House has taken a stand and delivered a truly pro-life piece of legislation which is a model for all other pro-life legislatures. It is also a model of what pro-life actually means for the rest of us. The understanding that pro-life means pro-all-life is something which needs to be addressed more specifically.
The majority of Americans support pain-capable abortion restrictions. Most likely a politician passing pro-life legislation was elected in part because of their life-affirming position and not through the votes of their pro-choice constituency. Yet exceptions for rape, incest, and fetal anomaly are regularly included in pro-life legislation. This is one of the most troubling aspects of this issue -- that these politicians supporting these laws are "pro-life" politicians. They represent pro-life persons when they vote. They represent you.
It is incumbent upon us to begin elucidating our positions from a logical standpoint -- if we are to support pain-capable legislation, then we need to support it for every baby, not just those who were conceived in optimal circumstances. If we create a dynamic where delegating negative value to certain groups of people is acceptable, then babies like my daughter are going to be the recipients. Unborn children will continue to be relegated a place in a strange hierarchy which assumes a pro-life title, but is discriminatory and anything but pro-life.
BIO: Sarah St. Onge is a wife, mother of 4, step-mother of 2, and pro-life blogger for Save The 1. She blogs on grief, loss, and pro-life issues pertaining to continuing a pregnancy after a lethal anomaly has been diagnosed, at www.shebringsjoy.com.
Thursday, February 12, 2015
Carry to Birth Group Celebrates Defeat of Ireland Abortion Law by Sarah St. Onge
In 2010 my unborn daughter was diagnosed with a lethal birth anomaly. We continued our pregnancy, much to the consternation of our physicians, and she lived for almost two hours after birth.
As the mother of a child who was diagnosed in the womb with a life
limiting condition, I take a keen interest in abortion legislation which
seeks to destroy protections for the most vulnerable members of our society like my daughter Beatrix.
This includes
international legislation like that which was roundly defeated in
The Republic of Ireland earlier this week. Socialist politician Clare Daly proposed a
bill that would legalize terminating pregnancies in which a lethal birth
defect had been detected. These laws have often been used to weaken
limitations on abortion overall -- removing the focus from the child
involved, who has a right to life no matter how short that life will be,
and instead wrongfully focusing solely on the woman carrying the child.
During
the proceedings we heard the stories of women "compelled" to leave the Republic of
Ireland to end their children's lives. "Forced" to have their very
personal medical procedures preformed in a foreign land, these women were
not surrounded by their friends and family as they allegedly "deserved" to be.
Not
once did we hear about the value of the child whose life hung in the
balance as an individual, except in terms of how the parent quantified
that value. Not once did we hear about the humanity of the child
involved, except in terms of how the expectant mother viewed the
situation. This is disturbing to me, as the mother of one of these fragile children.
Unfortunately, the
attitude that a child's worth before birth is dependent upon a mother's
judgement is one shared by many Americans today. When you add a lethal
birth defect (or a sexual assault) to the mix, then even many pro-life
persons have trouble properly focusing on the issue of the child's humanity.
This
was abundantly evident last month when our own House of Representatives
scuttled a pain-capable abortion prohibition because of the lack of
"protections" for women who have become pregnant as a result of sexual
assault.
This bill was widely
viewed as one of the most significant pieces of pro-life legislation since the Roe v. Wade decision, was supported by the majority of Americans, and was considered to be an
easy win for House Republicans, most of whom ran on a pro-life ticket.
The votes were there. It was set to be passed on the 42nd anniversary
of Roe v. Wade.
But it failed.
It fell fast and hard over one small item. A rape exception.
Like
lethal fetal anomalies, sexual assault is a bullet point that
pro-choice activists like to use when trying to defeat pro-life
legislation. It's their trump card, and it's the last life breath of a
movement that has been slowly dying for decades.
Either
one of these exceptions can be called up at will when any pro-life
legislation is winning support, and portrayed in such a way that
progress in terms of pro-life legislation seems "anti-woman." They sway
public opinion with one sided emotional stories -- never sharing the side of parents who love their children conceived in rape or carried to birth, and because pro-life legislators fail to articulate a strong defense of all life. They throw out images of women suffering under the undue
tension of these negatively affected pregnancies, and like the arguments
by Clare Daly, they never address the humanity or worth of the baby
involved.
Because of the overwhelmingly negative association with carrying to birth, based on the inappropriately focused pro-choice narrative, parents are very rarely told of the benefits of continuing their pregnancies. This creates a dynamic where women are pressured into ending pregnancies with affected babies, thus denying families the opportunity to parent their child for the short life that they will have. During my own pregnancy with Beatrix, we faced doctors who unapologetically pushed termination even after we had clearly stated that we were not interested in ending her life.
Unlike our own
lawmakers, the Dáil seems to understand what is at stake, that the deceptively-named "Protection of Life" abortion
bill has everything to do with destroying life. The Irish legislators understand that a woman facing a
pregnancy in which a lethal diagnosis has been made is not the only
patient involved in the situation, that the child involved has the right
to protection. No person should have the right to decide when
another person should die, based on the circumstances of their
conception.
As pro-life
Americans, it would behoove us to remember that the reason we are
called "pro-life" is our unshakeable belief that all life is sacred --
even for those whose lives may not last long. In order to continue the steady
progress which has been made, we must remember that the baby in the photo below is equally as important as the women whom Clare Daly was purportedly trying to "save".

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