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Showing posts with label Edwards Syndrome. Show all posts
Showing posts with label Edwards Syndrome. Show all posts
Monday, March 21, 2016
A President Who Kills Her Most Vulnerable Citizens? by Brad Smith
You can
measure the value of a society by how the weakest members are treated. Since 1989, Chile has been a country that
protects these precious souls, but President Bachelet of Chile has decided to
join the sick and depraved people of this world who have targeted disabled
children for annihilation. Chile’s
Cámara de Diputados has linked arms with President Bachelet to vote for a bill
that would allow disabled children to be killed in the womb by legalizing
abortion in these cases. Does a decent society
protect or destroy its most vulnerable citizens?
My wife and
I have a little girl named Faith -- now 7 years old. While
Faith was still in the womb, doctors believed that she was facing a grave
medical condition called Trisomy 18 or Edwards Syndrome. This is a chromosome abnormality that is
often referred to as “Incompatible with Life” or a “Fatal Fetal Anomaly.” We were pushed to have testing while she was
still in utero because they wanted us to end her life, but we were not
interested in ending her life, and we knew that even performing this test would
risk Faith’s life so we opted for no testing.
When Faith
was born, everyone saw that something was wrong. We found out a couple of weeks later that Faith,
in fact, had Trisomy 18. Even at this
point after Faith was born, we were being encouraged not to treat our
daughter. Doctors did not think that we
should offer her even some of the most basic medical care to help our child
live and thrive. We even had a doctor
who told us that “you will only prolong her life.” Seriously, isn’t that what the medical
industry is all about, prolonging life?
You see, in
the USA, we have allowed this perverse and demented view of life to take hold
in our country through legalized abortion.
We have created a culture of death that causes many in our society to
think of life as having little value and they are willing to judge the worth of another person’s life based upon their valueless
view. So now in the United States, doctors kill over
90% of children like my daughter Faith who have a disability. Before they can even breathe their first
breath, doctors murder our disabled children in the womb.
When I was a
young boy in 1973, abortion was legalized in the United States. Where I grew up in Ohio, we had a local
school that sent buses around to pick up disabled children and take them to be
taught. Today, the school no longer
exists because our culture has literally wiped most of the disabled children
from the face of our nation. This is the
legacy that we are leaving because abortion has created a selfish, narcissistic
people in the USA -- so consumed
with selves that citizens do not even care about the most vulnerable people among
us.
The world
has become a very scary place for disabled children. Good people of Chile, do not let your
president turn your country into a killing field for disabled children. Don’t allow yourselves to be deceived that
this is the best choice for everyone involved.
This is a LIE. Your country will
not be made better through abortion; rather, it will become degraded and
dehumanized. Your people will not have
better lives because disabled children do not exist; they will simply have been
deprived of the opportunity to develop compassion and to know the unconditional
love of a disabled child who has only love to offer.
Tell your
Senate to end this self-destructive bill that will eat away at your society
until you have no value for life. Stop
President Bachelet from taking you down the road that leads to
destruction. Do NOT become like the rest
of the world, but be an example to the world by loving your disabled
children. I can promise you one thing;
you will be a better society and people by protecting your most vulnerable citizens.
http://www.salvarel1.blogspot.com/2016/03/un-presidente-que-asesina-sus.html
BIO: Brad Smith is in sales for a Christian radio station, and a Board Member of Save The 1. He and his wife Jesi have 5 children, and are bloggers and pro-life speakers for Save The 1. Their own website is www.keepingourfaith.comwww.keepingourfaith.com.
Wednesday, April 22, 2015
The Doctor Said There Was A Black Cloud Over My Child, by Brad Smith
“I was offered termination at 23 weeks. That was the 4th doctor to offer it and she said God wasn't punishing me... And if I tried again there was only a 1% chance of it happening to me again.” Jennifer Giddens was told that she was pregnant with a child who had Trisomy 18 also called Edwards Syndrome which is similar to Down Syndrome, but much harsher. She was struggling to find a doctor who would help her. Finally on her 5th doctor, Jennifer met a pro-life obstetrician. He of course could not guarantee that her little Mary-Margaret would make it to term, but at least he was willing to help.
Mary-Margaret was born at 37.5 weeks weighing 3lbs 6 oz and only needed cpap breathing support for a few hours. A doctor who came to Jennifer’s room to discuss her condition said she had a heart defect, but central apnea (which is a breathing problem caused by the nervous system) would kill her before the heart issue. The doctor said she had a day...maybe a week. Well, she was beating their expectations, and 8 days later they took her home. Doctors always said Mary-Margaret was a candidate for surgery when the time came that she needed it. Jennifer talked to the surgeon personally a few times and she was reassured that the doctor was more than willing to perform the surgery. The cardiologist said Mary-Margaret needed to be 4 lbs to have the required heart surgery.
Many children with Trisomy 18 struggle with heart and breathing issues, and Mary-Margaret was no different. Some time passed and her heart rate began to drop when she slept so Jennifer took Mary Margaret to the hospital. Now in the hospital with her daughter in need of the promised heart surgery, Jennifer was confronted with a harsh reality that most parents of Trisomy 18 children face…a heartless doctor. Jennifer told me that “the attending doctor said on rounds that ‘there was a black cloud over M&M and it was coming.... REAL soon. That there was nothing to do, but surgery, and nobody would operate on a baby like her.’ She was yelling all of this outside the door” so everyone could hear her. And this is supposed to be a teaching hospital. Maybe the doctor felt everyone outside the room needed to learn that Trisomy 18 is “incompatible with life” and that HIPPA privacy laws don’t apply to her.
When the doctor walked in the room to talk, she asked what Jennifer knew about Mary-Margaret’s condition, and Jennifer said “enough to know there's hope for her.” The doctor responded “IF there were any older babies alive they didn't have a heart problem. That no one would do surgery on her because she was scrawny and she was struggling. And why would I want to prolong suffering.” This doctor obviously did not care enough about this beautiful little child to do a little research and find out that many children with Trisomy 18 have heart surgery and 90% of them survive it. Oh, and most T18 children have heart issues like the dozens of living children who we personally know including our 6 year old daughter Faith.
I have written several stories about parents like Jennifer and children like Mary-Margaret. Like Jennifer, we had to fight to get treatment for our daughter and now know parents from coast to coast who have similar stories. Our daughter almost died, but survived despite the doctors who thought she should die. Jennifer is a brave mother who is willing to fight and allow me to tell her story, but her story is different from the other children. The difference? Mary-Margaret did not survive the doctors who thought she should be dead. Instead of working to end suffering and striving to prolong her life, the doctors refused surgery to Mary-Margaret. Jennifer had to watch as her child struggled for her last breaths.
Are you sick to your stomach yet? This story is happening everyday all across this country. I know because my wife and I experienced this with our daughter too and had the same comment made to us about prolonging her life. Isn’t the entire medical industry based around the idea of prolonging life? Measles, rabies, small pox, and malaria are all diseases that cause suffering and death, yet doctors worked to prolong life and end the suffering of these patients. Because of innovation by life-loving doctors and their self-less work, these diseases can be wiped out and life prolonged for millions of people. I have a novel idea. Let’s apply this type of innovation to every situation possible and see what great things can happen.
Brad Smith and his wife Jesi are Save The 1 pro-life speakers @ savethe1.com from Rochester Hills, Michigan. Learn more about Brad and Jesi at www.keepingourfaith.com.
Tuesday, September 30, 2014
Why Does This Hospital Want To Let My 2 Year Old Daughter Die? by Brad Smith
We have a friend, Kayse, here in Michigan who has a
beautiful little 2 year old girl named Lila.
Kayse sent us an update the other day (Saturday September 27th)
because Lila has been sick for the last couple of weeks. Most people have read about the viruses
making their way around the country and get a little nervous about their
children getting one of these viruses that have put so many children in the
hospital. Well, we pay close attention
to these updates that we receive because Lila has Trisomy 18 (Edwards Syndrome)
which is the same chromosome abnormality that our 5 ½ years old daughter Faith
has. These respiratory viruses can be
particularly difficult for our children.
Lila has been hospitalized twice this month for a total of
about 11 days for a bronchiole infection and lack of oxygenation. Wednesday
evening she was discharged from the PICU (pediatric intensive care unit) on a
small amount of oxygen. Doctors told Kayse to continue with care at home and to
return if she gets a fever of any kind or if she gets worse at all. Well her oxygen saturation started dropping
into the high 70's which is very low since our bodies need to operate in the
mid 90s. Kayse upped her oxygen and gave
her a breathing treatment. Then Lila developed a low grade temperature so they
called the after-hours pediatrician number, and the doctor asked them to go to
the hospital. When they arrived, the resident and attending doctors in ER wanted
to have her admitted. The ER doctors had
the PICU resident and attending physicians come down to look at Lila. In the meantime, the nurse had not come into
the room yet, and the respiratory therapist gave Lila a breathing treatment and
stated that her lungs sounded coarse which means she had mucous in her lungs.
The PICU doctors arrived and claimed that Lila had a left
ear infection and wanted to send her on her way. Knowing that the respiratory therapist said
her lungs sounded coarse, Kayse did not accept this and explained her fears
about how many of our trisomy children pass away from respiratory problems, and
she did not want that to be Lila. At
that point, the doctor from the PICU looked Kayse in the eye and asked if she
knew anything about trisomy 18 children and their life expectancies, and how
Lila is past her life expectancy. Obviously, Kayse was very upset and angry. She understands more about Trisomy 18 than
this doctor because she has been living it day in and day out for the last 2
years. Not only is this an insulting
question to Kayse about her understanding, but worse, it is an attack on the
value of Lila’s very life.
Kayse explained that until this illness Lila has been a very
healthy and happy child. She has more than proven herself, time and time again…like
she should even have to prove herself to earn treatment? Is this doctor the
arbiter of whose life is worthy of treatment? Should Lila now have treatment withheld so she
will simply die and go away? Why should
Lila not be offered the same level of care as any other child? Why shouldn't she be given steroids to help
her feel better faster? Why shouldn't they run tests? How is it OK to stick her
in a room for 4 hours and never offer her Tylenol for her fever and discomfort?
How is it ok that her nurse never even came in to assess her? How is Lila’s
life worth less than the other children in the hospital?
As I read Kayse’s update and what this doctor said, I could
not help, but think about my own illnesses during my childhood. I had pneumonia 4 or 5 times between ages
1-7. My parents were visiting this
weekend for my 14 year old son’s birthday so I asked them if anyone ever
suggested that I was past my life expectancy or did they simply treat my
multiple illnesses? They made it clear
that no doctor ever even suggested such an idea and they simply treated me as a
child who needed help. I had pneumonia
more times as a child than my 5 ½ year old Trisomy 18 daughter Faith has had
it. So why was my life worth saving? Is
it because I have the ability to write this story? Lila and my daughter Faith are lovely little
girls who have tremendous value because they were created in the image of God.
Lila is now resting at home with her parents. Please pray for Lila that she will recover
quickly and for her family that they will be able to rest and have peace.
LifeNews Note: Brad Smith and his wife Jesi are Save The 1 (www.savethe1.com)
pro-life speakers from Rochester Hills, Michigan. Learn more about Brad and Jesi at www.keepingourfaith.com.
Thursday, June 12, 2014
Beware of Slow Care, by Brad Smith
We thought they were helping. Every time we took our daughter Faith to the
hospital for her illness, they would nurse her back to health. Faith has Trisomy 18 (Edwards Syndrome). Trisomy 21 is Downs Syndrome. Trisomy 18 is much harsher with 90% of these
children not reaching their first birthday.
At this time, Faith was 2 ½ years old and began to have some serious
illnesses that almost took her life several times. The hospital did some basic things to help
her get over the illness and we thought that they were giving her the necessary
care any other child would receive.
However when I had an opportunity to ask Rick Santorum for some advice
since his little girl Bella also has Trisomy 18, Rick gave me advice that I had never heard
from the mouth of a single doctor. I was
somewhat skeptical when he first shared the list of things that we should be
doing for Faith, but he convinced me with some very straight forward and honest
comments. He said if we didn’t do this
that we were going to lose our daughter...now you know how he convinced me.
After receiving this list of items,
I went to visit my wife, Jesi, and Faith in the hospital during my lunch later
that day. When we showed this list to
the doctors, they told us that NOBODY does this. Huh? We pushed to get the doctors to help us, but after
a third hospital visit and a near death experience for Faith caused by the same
problem, we finally figured out that they would not treat her. I know, I know…why did we go back to
them? Well, you expect your doctors to
help you and parents in our situation often trust, but need to realize that
trust MUST be earned (as we have learned).
This is when we learned about “Slow
Code,” although we had not discovered this term yet. Because of our experience with multiple
hospitals, Jesi and I began a journey to get the law changed in Michigan. During our journey, Jesi researched medical
journals on Trisomy 18 which is when we learned the term Slow Code. Slow Code is when the medical providers offer
the appearance of treatment, but knowingly administer the treatment so slowly
that it is useless to the patient. This
may sound crazy and like something we might make up. We not only learned the term from their
industry journals, but we experienced it.
There are times in a hospital where you might hear CODE BLUE for an
emergency, but why is it you never hear CODE SLOW? Hospitals hide this practice in a deceitful
way so they can inflict their decision on the patient. This is not care, but lethal neglect or
intentional death which I have always termed murder.
In one article of the Journal of Perinatology, a pediatric ethics committee discussed an option of Slow Code as a possible solution in the case of an infant with poor prognosis. CPR had been offered to the parents and was later withheld by way of a DNR placed on the patient by doctors. The committee debated this decision, but only from the perspective that CPR should probably have never been offered in the first place. So here we have a committee of medical “caregivers” suggesting that forms of care should not even be offered to patients based upon their value(less) judgment. Withholding medical care and suggestions for treatment is now the medically ethical way to handle a patient? In the end, this particular committee decided that it is deceitful to use Slow Code. Ya think? The fact that this suggestion was even considered legitimate enough to be discussed is troubling.
This brings us back to our daughter Faith. We were not even offered what we now know to be pretty basic treatment for today’s medicine. Our daughter Faith had severe sleep apnea which most novices in sleep apnea could have determined. She had a small jaw which was obvious to anyone with even a little experience. Our problem, we were not even novices at this point and we had no clue. We cornered a doctor for an hour in the doctor’s office before he finally told us that if he were in our shoes, he would go to the other hospital. Really? After three trips to his hospital and on the verge of a fourth, we finally had some honesty. Our daughter needed a sleep study which showed the necessity for a Bipap (very similar to a Cpap) to help her breath at night. When we reached the other hospital, they could not understand why we were not provided with this help for our daughter. Faith is now 5 years old and doing things that the first group of doctors said would never be possible. Well, they were right about one thing. She never would have started walking or probably even have survived had we followed their advice, or lack thereof.
Brad Smith; Married for 16 years to Jesi and the proud
father of 5 children living in Rochester Hills, Michigan; Save The 1 pro-life speaker, pro-life blogger, and Board Member
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